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a reward in the Snoezel room

On Friday I was back hard in the morning group, which I now have well-known program. Also have the equilibrium Parcour again properly done and in the afternoon I finally got back to Anna to WATSU
. Phoa ... of course, has fallen back to me Supergut. But this time we do not disturb Mom with her camera, Anna and I were all alone in the water and I enjoyed habs .... Anna and I - we have a special wire to each other here since my first visit. I then had individual therapy and as my mom then Jette convinced that the Snoezel room
. Might be a good idea where I'm relaxed now already so beautiful and I was lucky, we were allowed in and there are a few movement transitions (eg, sit-stand knee) practiced or crawl - for this great water-Blubbersäulen I do in fact almost everything - I like sooo good!

"Snoezelen" (read: snuseln) is the combination of Dutch words "snuffelen" (sniff, sniff) and "doezelen '(doze, slumber), and represents the concept of sensory impressions , Feelings and relaxation. It represents a holistic approach (body-mind-spirit) and meets the need for acceptance, understanding, human warmth, closeness, and for sensual experience possible in an atmosphere of trust liabilities and relaxed one. 'Snoezelen' means that stimulates the senses will be essential, but without presupposing intellectual understanding. "Snoezelen" learn how people can partly by passive exercise in part by active experience things in their environment anew or to gain experience "(Mama says that this is the best explanation, taken from:. http://www. behinderten-reha.de/mobile/snoezeln.htm
) two girls with Rett snoozeln, relax already ... :-)

My friend Cathy (also a Rett girls) is then also come in, the Blubbersäulen liked both of us -

... and in the end I was so relaxed that I have just taken a nap, did - take advantage of what is going on - namely hats Mama not noticed that I'm asleep, which has geratscht with the other moms in the room. * Hihi * All in all it was a great Friday.

to say And I show you what, during the stay here I had only two times my one-hour-after-the-sleep-29-minute cry-attacks, or I could always sleep well. This one-hour-after-the-sleep-20-minute scream attacks plagued me now for 2 years. Hopefully it keeps sleeping well at home without these attacks yet, that would be really great.

Saturday and Sunday are quickly told: eat, relax, sleep walk, walk, cuddle ... Mama and I have made it easy comfortable. Now I am looking forward to tomorrow Monday on the last course of therapy, and especially the conclusion, that the coronation on Tuesday morning.

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and Hokage!

After right "Schlaftag" with fever and cough a bit since yesterday I am fit again - apart from a cough now and then. Also allowed me to accompany yesterday, the mom in the group and this has motivated me so much that I have been through the whole morning really great. I'll show you the best just a few photos, then you can once you get an idea what I'm here all morning so everything and practice.
(Körperwahrnehumg)

The song "The little musician Duch travels the country"
stamp their feet

the Mama!

drums on the giant drum
"do something with both hands"
very difficult for me, so help me

I'm totally with the thing!

Hr. Burger with the guitar comes round every day to
educational unit
I know him may have from my "previous stay"
I really like - eh clear
who plays guitar and sings - that's super!

phu ... but this is complicated for me!

"make something with both hands" - on
"act" rope along the body at dolly
follow suit and further fall again, and from the front ...

that was just for the photo! :-)

The equilibrium course with
different soil conditions and also further engage with both hands on the bars ...
phu ...
I do not usually alone - ehklar -

phoa ... but that is loud - I like that!

All children can play together on the drum -

before.

a reward for a "Balace-act" over the long bank to
Linsenbad - ui, I'm happy, because
spray the lenses everywhere!
That's sometimes a real reward for the strenuous training

the afternoon I was still in the woman teacher in the house. Why? Well because I'm already but finally attend school now and not easy 2 Weeks, stay away from school. Therefore, the therapy is for children here at home, a sanatorium school. The Evi, the woman teacher is quite a funny and had great ideas for me.
eg I could only pritscheln times with water and all kinds of fish out (balls, stones, marbles, small. Balloons, ...), which a super wet mess * hihi * was, then paint a funny picture of a "color-spin machine ", which I also like very much. These great ideas from Evi I go here just like in the school as at home in Wels.


wars funny!

splash in Wasserwandl -
the pants were soaking wet and the Leiberl ...

we have steep painted pictures!

The "color-spin-machine" - voi supa! I just have to wait
the color, the mother has then trickled
to the paper and by turning
is then a veritable "explosion of color"

therapy fun!

The teacher Evi - has really fun ideas -
makes school go next to the

And after that busy, busy day, I'm really in the evening "from the audience" fell into bed ... the Sandman I've been asleep.

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painting and Gatschen and a day off

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Veneers (shells)

A dental veneers with produced normally in color and formally perfect teeth. Prerequisite for treatment with veneers is a detailed preliminary investigation.

A major benefit of veneers is that is being sacrificed to secure the crown of little (or no) healthy tooth and the tooth can be preserved. For the production of veneers from teeth impressions taken and made in the dental laboratory according to the marks. Composite veneers can make the dentist on site. Veneers are usually attached by a bonding technique. A treatment with veneers is not possible in every case. If the affected tooth been damaged heavily, is a delusion with veneers no longer possible.

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weekend and sunshine, ...

... and then with mom all alone, ... that's really fine!
Den this Saturday I can tackle very quiet - we were after breakfast eingemümmelt well walk outside - I could be comfortable sitting in the wheelchair and push me. Because of cool air and the fresh wind Mama has presented quite a pace (I think that was a bit chilly) and I'm at the shaking of the Split Roll once comfortable in the wheelchair on the sidewalk to sleep! * Hehe * is cozy different sleeping positions are also healthier, but who knows me, knows when I want to sleep, then I'll just keep his eyes open and ratz away for a few times just shake! :-)

But when we arrived in the "City of Bad Radkersburg were, of course I was wide awake, finally, yes, my opinion was asked as a shopper, what we have to buy my two sisters as a gift ( Mama and I have found great things for the two - I only say "Lillifee" * grin *.

After a detour to the famous fountain in front of the spa
- the likes me sooo good ... but then we went back quite quickly back to the hotel * brrr *.

the afternoon I was allowed to endlichmal undisturbed enjoy the giant ball pool - Mama, meanwhile, a mom a lot said about AAC and the young man was allowed to immediately try out a few computer games such as BigBang , abracadabra, switch skills a button. Even Catch Me the BigTrack understood the little man was the same and with great Interest in the matter! Of course, Mom also explains how the battery with a breaker or PowerLink
works - it works even sure I was almost a bissi envious, but so completely alone in the ball pit and what - at last I had it also have some time.
Then of course we are still went swimming in the hotel pool - mei was super! So nice and warm and this time there were many other children in the therapy pool - it was funny!

Sunday morning we will also spend enjoying the pool, the mom and I have already been made!

Barbie, Strawberry Shortcake

water to swim there ...

This morning I was back diligently in the group - we practiced again movement transitions, quite exhausting and we were even out there this morning. Besides I have today with Simon rice from the spoon "himself" ate, well at least I've helped hold the spoon - I think the direction has been given him, but it worked quite well, at least a large part is yet landed in my mouth :-).

As a "reward" so to speak, for the busy morning, I received this afternoon a unit WATSU
with my beloved Anna. When I finally saw it again, I am so happy, my smile rays and went from one ear to ear!

If you do not know what WATSU
is the Shiatsu is in the water, a really great recreation program and is used here deliberately to achieve better therapeutic results in the other treatments. Anna has even managed to loose my were strained by extended knee in the water and they could move me so perfectly through the water. Voi Guat!

has
Then Mama me "einmumifiziert" and we are of the therapy pool at the rehab clinic for a short stop at Peter, speech therapists, very quickly, "above ground" back GEDU back to the children's therapy center in the hotel - and there I was allowed again into the water in the 30 ° C warm hotel pool.

In the pool, I then also Rett girls met Cathy, here is the same time with me to therapy. Kathi is in the group but for the younger children, the program is called "Parents' School", because - unlike my program - for younger people with the mom in Here the group.
Phoa, about me, but I've got my joy back and had to proclaim loudly ... I think it time I know all spa guests in this house * hehe *.

Today I was a real water rat - single again tomorrow afternoon at Jette therapy is on the program, see what I'll be there to do everything again!

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kids a chance - we're back, yay!

We work yesterday after a long drive again a hit with kids chance

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the 57,000-terminally visitors ...

Phoa .... present but we are flat ... Today, in the course of the day was one of the visitors on my 57.000ste Blog! .... phoa ... * * Speechless


THANK YOU for your visits here at the blog you for the nice words in Guestbook
and the comments (all of which I read in person!)
THANK YOU for your tips - by e-mail, sms, as well more .... THANK YOU for your donations, such as from the last round
mothers (heights that many would not be possible)
THANK YOU for your participation in Isabella's development - it makes us more courage and give us strength for everyday

Another reason why there is this blog is simply to make known to the Rett Syndrome! Other families will have easier, to get their child's diagnosis.
Rett syndrome is simply still relatively unknown - even to this, we would like to contribute! By the way Mama
just looked at the statistics - the 57,000-terminally visitors were calculated on the homepage of kids-chance
where tomorrow I may go back for 2 weeks along with Mom. Well, like really super!
stable after long negotiations with the country OÜ (see here or here), it can no longer simply about the Upper Austrian government funded, but now financed the rehabilitation stay, the health insurance fund. I'm looking forward immensely to the two weeks - it is really tiring with the many therapies, but the therapist to make there, the always packed so well in many games and songs, that's really fun. We will also go there every day to swim in the warm thermal water, I'm certainly very good again! find reports of recent therapies for their kids chance HERE

, of course we will keep you well over my current residence on the running!

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THANKS to the mothers lap

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Mama is working again ... But where!

imagine, my mom is now since the beginning of December ! Work And you also want know where? Hihi, ... na this is really great class, I tell you. My mom now works in the outpatient clinic of LifeTool Linz
! How did it happen, will you know? Well, so is this: the lady that took us usually advise LifeTool However, the Irmi
who is pregnant and gets in the spring of twins and so was a Mom asked if they did not start out as a qualifying agent for Irmi (!) like - well, what do you think of how that has got! about 5 years ago was the first time a mother BIGmack
in hand, because to me that like it so much and I so much progress in did AAC with icons and buttons, it has more and more knowledge angeeinget rate to support communication. Now they can for other families or other clients implement and which help to find the right things or ideas to communicate. Mom is now always Wednesday, Thursday and Friday to reach the office in Linz
. We girls are so in the morning anyway in the school or kindergarten and then in the afternoon at grandma's or dad. Dear Mama, I'm looking forward to with you and wish you much fun in your new work!

THANKS to the whole family that supports us when mom goes back to work!

Bottomless German Woman

mourning for Dr. Offenberger ...

... This morning I was the first time on a funeral here ... the chief physician of the children's ward Welser Dr. Christoph Offenberger
.
He has looked after me or rather us from the beginning. Especially in the beginning he was a key contact, as not so clear was what was wrong with me, for example in terms of epilepsy. With him at that time my parents have also asked for the drawing of blood for the genetic test for Rett syndrome ...
Even though my parents and he was not always agree - he was an important wheel in our way to diagnose Rett syndrome. And we always had the feeling with him professionally to be in very good hands.
Today we said goodbye to many other people from him in the church in Wels - it was a very moving exhibition for a person to whom much was the welfare of disabled children.
Even the Upper Austrian news report about the death of Dr. Offenberger: http://www.nachrichten.at/oberoesterreich/art4, 530 456

Dear Dr. Offenberger! I was always happy with you, even if you usually have blood drained me, but thanks to your "magic cream" that was never painful - thank you for everything you done for disabled children and their families have - we have this evening at home again lit a candle for you.

492148_R_by_Brigitte-Kreuzwirth http://www.pixelio.de/

"Comforting is an art of the heart - it is often to

not to love and silent mitzuleiden. "

Otto v. Leix

Cervical Spin Radiothrapy

The new year is approaching in leaps and bounds - and the Christmas holidays this year I can enjoy, - As a school child for the holidays so I have now a very different meaning ... :)
As you perhaps know, my parents make me toilet training, that is, I wear but a diaper, but at fixed times of the day I sit on the toilet, where it can do my small or big shops (when I want, what indeed not always the case * hehe *) is. Usually very slow because my digestive function (chronic constipation is indeed quite typical for us Rett girls) the thorough monitoring is needed by my parents to me it can administer the medication for digestion. To simplify that has my Mama thought a funny idea - my toilet-calendar ...

that any "success" whether large or small, is on this calendar by using adhesive dots indicated (yellow is Lulu, orange is Great). Thus, my parents have the "full view" without have to communicate constantly talking daüber (soo delicious is the subject now being expected to not re ...) - but especially for me, this is really great! Why? Well, because the toilet calendar hangs on the inside of the toilet, so if I sit on the toilet, right in my view. And every time a sticking point is glued explained with Mom or Dad will like the following: "Look, today is Tuesday the 28th December -. And you have made a degree of Lulu, that is, we stick here point towards a yellow " means that when urinating, I see the icon for the current month and day of week, see what day is today (Zahlen!!) and then perhaps get a better feel for my concept of time day / week / month ... also I'm learning along the way, the symbols for the months to know that I've on my talker on it and in my book release
. Sun a great calendar you can easily create with the program Boardmaker
, are there, even by default templates for the preparation of such calendar included. But Mama has also a great tip for you, namely HERE
on the side of Rehavista you can you the individual. Bm2 files of calendar months for 2011 already fix-download finished, even in PDF files to be download!
Major Holidays and vacations are already registered, but for the German state of Lower Saxony. The holiday in soft yes Ö somewhat, but are easy to customize in the Boardmaker template.

Selbstversändlich you can also use this calendar for a birthday calendar, or a "blow-by-calendar up to the holidays, ... what ever you can think of!